A 7 year old boy with a huge facial tumour is finally having operations to remove the growth with the help of his community.
Aditya Misrha, seven, was shunned by other children, scared by his appearance, but thanks to the kindness of his community, it is now being fixed.
It will cost £1,000 for the first part of the operation, but the family needs another £5,000 for the next six operations.
The rare condition blinded him in one eye after his face deformed since he was born in Ramnagar Sodhala, Jaipur, northern India
He was called ‘ghost’ and ‘monkey’ by other children and became increasingly isolated.
His mother, Neetu, said: ‘He becomes very sad at times. If he goes out to play with other kids, they get scared.
‘My worst fear is what will we do if his facial tumour grows further or it simply bursts? What will we do then?’
She added: ‘It was very painful, I was wondering as to why my son was suffering from such a condition.
‘We helplessly saw his condition deteriorating. His eyes were disproportionate. I could see his right eyelid growing and covering his eye.
‘My worst fear was that it might affect his vision – and right under our watch, he lost sight in his right eye.
‘He gets headache very often. He often complains about pain near his right forehead. At times, he would not eat for days. He would not even take water. He would just complain about pain and keep crying.’
Despite his condition, Aditya is desperate to go to school like his younger brother, but has been told he will scare the other children.
Aditya’s father Niraj is a warehouse worker, and has sought medical advice to help his son.
Niraj earns a small salary and already finds it difficult to keep a family of six people, including his parents and two children.
With the help of family and friends the community raised the money for Niraj to have his first operation in November.
Aditya will need treating every four to five months, and the complete process will take between two and three years.